Thanks to Halfway to Hazard for permission to use this song!
"Daisy"
June 26th 2009
We are home Thanks to the Wonderful Team of Doctors at CHOP. we got home at 800 pm but Daisy didn't want to get ready for bed she was so excited to be home. Daisy and William played chase for an half of an hour before she sat down and was willing to put on PJ's. This morning I went in her room and she said Mommy we are home! I'm home! it was so cute.When we came down stairs she had to say Hi to all her toys that she hasn't seen and asked them were theyve been.
Today is dressing change and we are working on some changes we will be putting bleach in her tub water with the jets it seamed to work in the hospital with out causeing too much pain.we are also going to change our rotation of antibotic ointment use durning dressing change to once a week instead of every dressing change. Hopefully this will work for a while.Thank you to every one for your prayers and support.
June 24th 2009
Daisy is in better spirts even though we are still in the hospital,she was up walking and playing with Barney and Micky. Daisy is still not eating or drinking she only had 6oz to drink today.Daisy did play with her dinner tonight she mushed her jello with her fingers and then wanted to eat her icecream with her fingers.I want to thank every one for your supportive emails and prayers. We are hoping to be going home tomorrow if Daisy is doing ok .Thank you to every one who has help with the boys and dogs this past week.Wishing positive things for all.
June 20th 2009
another day at CHOP another dressing change. all of her wounds look the same except for the right arm where the picc line is the infected area by wrist is now up the whole lower part of her arm and going above the elbow.The bad news is the blood culture from yesterday is came back today still showing MRSA Infection in the blood and they can't use IV antibotics to treat it because she has had reactions to the only 2 it is sensitive to. So she is on an oral version but they have to watch her very closly. The good new is her temp hasn't got any higher and only one wound looked worse. Daisy is in good spirts this evening.It amazes us how sick she is and yet she still smiles and tells us she loves us. Please pray for her to start healing and get rid of this blood infection.Thank you to all the wonderful nurses, and Doctors on 5 south for taking care of Daisy.Thank you for the prayers, keep them coming. Wishing all many blessings.
June 18th 2009
Daisy's blood culture came back positive for staph we started another IV antibotic for the blood infecttion but she got very flushed and her eyes got puffy so they stop it. Her temp went up to 101.5 it was a rough day. highlights were seeing childlife they came in with bubbles and playdo. Daisy loves all nurses coming in to visit.we did dressing change all her wounds were worse and we had some new ones. I hope tomorrow will be a better day. they will do another blood culture. I pray she will feel better and start healing. Thank you to Kerri for helping with the boys.Thank you to every one for the positive emails and prayers I love reading them.
