Daisy 2 years old!

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"Daisy"

Dec 8th 2009
Daisy had a hard time the past two days. First on Sunday she spiked a temp for a little while. Then Monday we went and saw Dr Shah she said we could stop the meds and wanted Daisy to have a consult with ENT and possible Cardio. We left and had a xray done, went to lunch and then she a spell were she turn blue around her nose and mouth then passed out within seconds... Daisy came to but went to sleep right after. This is worry some because she still has no voice and is not eating or drinking and she started coughing and gaging on Saturday and now this. We are in CHOP on our usal floor with nurses and doctors that know her. Hopefully it will be a short stay but not too short.I pray they figure this out before we go home.
 
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What is EB?

Daisy was born with EB.
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What is EB?