Daisy 2 years old!

Daisy

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"Daisy"

Jan 29th 2010
Daisy is still in CHOP.They ran some test but no answers yet. Daisy is still having tummy pains and on and off temps, not eating, lose stools,she has foam and mucus when we check residuale. Today we are having an ultra sound and some bloodwork done. I guess we will just have to wait and see.The white patch of skin with red dots under it they cultured yesterday it looks like some other strange rash maybe yeast.Hopefully we will get to go home soon.I'm suposed to have Daisy's new baby brother via c-section on Tuesday Morning which is his actual due date. Please pray Daisy gets healthy and stays that way until I'm healed enough so I can take care of her.
 
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RT 209
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What is EB?

Daisy was born with EB.
There is no cure.
What is EB?