Daisy 2 years old!

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"Daisy"

Jan 30th 2010
Daisy got her G-J tube last night. It was a rough night. Daisy was Gaging every time she tried to drink. her heart rate has been up. We hope its from being dehydrated. This morning she is just lying there crying on and off.I hope today gets better. We have dressing change the doctors want to look at her wounds which are growing Yeast and Psudo bactiria.They did get to do blood test yesterday to check all of her levels which at least will tell us if she is absorbing most of her nurtient,We were worried because her protien levels have been low lately.Please pray things go well and Daisy gets to go home before Tuesday.
 
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RT 209
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What is EB?

Daisy was born with EB.
There is no cure.
What is EB?