Thanks to Halfway to Hazard for permission to use this song!
"Daisy"
Oct 7th 2009
its Dana, Daisy's MRI went it ok only showed skin infection and all of her lymph nodes are enlarged.The wound cultures showed she is sensitive to the meds she is on. Yesterday the temp was up over 101.5 most of the day then last night she went o...ver 102.5 so they did another bood culture. I pray this temp goes away and dressing change goes well today.
Oct 4th 2009
Another day at CHOP. Daisy's temp has been slowly climbing up Even though she remains on IV and oral antibotics. She is still turning her leg inward. her left thigh has a very VERY painful wound. During dressing change yesterday she started shaking as soon as I took the bandage off her leg. Her heart rate shot up and her oxygen droped when I tried to clean the wound:( We took some cultures and did some more blood work. Daisy's temp went down for a little while this afternoon she was having fun with some butterfly balloons. We have another dressing change tomorrow and possibly an MRI. I know we are at the best place for Daisy and they are working hard at tring to take care of her. I pray she gets better soon so we can spend some time at home before we go to Cincinnati's childrens hospital for EB CLINIC.
Oct 2nd 2009
We are back at CHOP got admitted last night. Daisy is still running low grade temp not acting well, not eating or drinking and is not walking much and when she does she is turning her left leg inward. We are hoping its NOT a more serious infection.
Sept 25th 2009
We made it home this evening. Daisy was sent home with a Picc line and we have to watch her fluid intake very carefully. Daisy is having problems with lose stools from the antibotics and has had problems with staying hydrated.Hopefully they plan we were sent home with will work. Thank you for all your prayers and support. OH Thank you to thoose who sent Birth Wishes for William who turned 13 and became a TEENAGER on the 22nd.
