Thanks to Halfway to Hazard for permission to use this song!
"Daisy"
June 18th 2009
Daisy's blood culture came back positive for staph we started another IV antibotic for the blood infecttion but she got very flushed and her eyes got puffy so they stop it. Her temp went up to 101.5 it was a rough day. highlights were seeing childlife they came in with bubbles and playdo. Daisy loves all nurses coming in to visit.we did dressing change all her wounds were worse and we had some new ones. I hope tomorrow will be a better day. they will do another blood culture. I pray she will feel better and start healing. Thank you to Kerri for helping with the boys.Thank you to every one for the positive emails and prayers I love reading them.
June17th 2009
The infection has gotten the upper hand. Daisy went to CHOP last night. We are waiting to take her to IR for her picc line. Daisy has only had one wet diaper in about 20 hours. all her glands are still swollen but she is in ok spirts.
June 11th 2009
Daisy stayed in the tub with the jets on Yesterday!!! Yeah! It took a while to get her use to it but she didn't cry yesterday. Daisy is a little under the weather she has infection and is on antibotics again :( however it is only oral not IV. The results came back from Cincinnati I had a brief conversation with Dr Lucky but the good news is she wont need stomach surgery at this point:) Daisy does have very slow digestion and they want to put her on a low dose or antibotic to speed up her digestion however our GI in philly said in most cases it stops working on the digestion after awhile. Daisy is going to get a upper GI xray with contrast to get a better look at her stomach. Daisy is happiest in the kitchen. No one can go in the kitchen with out her asking to cook. Please pray for all the EB children and their families. Wishing many blessings to all.
05-29-09
Daisy had a good week but her wounds have gotten worse and the infection drainage has increased. She has been running a fever on and off for the past couple of days but her appetite has increased as she has become like her older siblings in that she is a butt hanging out of the frig.She has taken an intrest in "helping" prepare her meals and ours.Last week Eric and Patricia came for a visit from the UK.It was great to see Eric again and we enjoyed his visit. On Sunday we had a Memorial Day party for some family and friends.Daisy had a great time playing with McKenzie,Savana and Delaney.Then on Monday we took her to Dorney Park and she had a fun time going on some rides.Cincinnati is still trying to get everything coordinated so there is nothing new there to report. Thank you for all of the prayers and support for Daisy and our family!
