aschulte
08-29-2010

Thank you
It was soo amazing to have read about Daisy. We were getting pretty sad about Heaven and when Anitra found your site it was just the hope we were looking for. We have no idea what the future holds, but praying for the best for little Heaven and now Daisy as well and thanking God for every single day. Thank you for sharing your story and helping raise the awareness about JEB.. your story/family is an inspiration to us!

Guest
07-14-2010

Hi all
Hi everybody, I just want to say hello! How is everyone??

Pursell
05-04-2010

many prayers
I continue to keep track of Daisy through your generous updates. I can only say you are a wonderful family with an amazingly strong child who is engraned in my heart. Having a grand-daughter who's 1 month difference in age and blessed with great health I can't begin to imagine what you've all been through. I will continue to pray for Daisy and all of her amazing caregivers. Thank you so much for sharing your family!! Ever since that one fund raising drive I don't remember exactly when but a good 2 years ago that little girl stole my heart and I truly appreciate being able to keep up! Melissa

AuntSuess
03-27-2010

HAPPY,happy Birthday!!
HAPPY 3rd Birthday Sweet Angel!! I am so happy you have been feeling well lately, you deserve some LONG TIME away from the hospital. I am so glad you found a good game to play with Daniel, you are a good Big sister! I bet you like helping Mommy with him also! Spring is here officially which I know is great news for you, I look forward to hearing more outdoor adventures. Keep your eye on the mail this week also. Hugs to everyone :) Love you all, Aunt Susan

AuntSuess
03-21-2010

being home
Hi Daisy, I am very glad to hear that you have had no hospital stays in a while, that is awesome news! But I am very sorry to hear you and your Family lost your great grandma Daisy, but she had a long, full life, and was loved by so very many and is at peace now. I am also sorry to hear there will be no more therapy, unfortunately there are laws and caps, and also the economy is rotten, so it affects all people, and usually the ones that need it, are affected the most. I hope things go well with your new feeding tube, and that all is well with all of the family! Love you all, Aunt Susan

XboxAmazon
03-18-2010

Hello everyone!!
So... how is it all going?)))

AuntSuess
02-10-2010

Wishes
Hi sweet angel, I so wish that I could magically do something, anything to take your pain away. It hurts me,that I can not. It hurts me,knowing that you deal with so much pain every day. Now this not-being-able-to-eat and get the nourishment that you so need,to maintain your body, to grow and mostly to heal is really not good,and that weighs heavy on everyone. You are so very loved, by more than you know. There are so many people,friends and family,and friends of friends that love you, think of you and pray for you. On a happy note you have a new brother,and it sounds like you are going to be a very good big sister and helper to mommy!! You are in my heart and on my mind everyday! I love you, and everyone in your family, xoxo Aunt Susan

ashley11300
02-02-2010

we are supporting you
hi im Ashley and i feel horrible about what Daisy has been through already in her life. So in order to help your family out i will be raising funds for your family and i will also help spread the news about what E.B. is. If you need anything i will be more than happy to help as much as i can. i pray for Daisy as much as i can and also for your family. Ashley =)

penny47
02-02-2010

DAISY
Sweet little one, my prayers are with you and i will be praying for you every day. God go with you!

AuntSuess
01-29-2010

so sorry to hear
I am so sorry to hear that Daisy is suffering so. She is always in my prayers, every day! I am also praying for a uneventful delivery and that the new baby will be healthy. Love you all, Aunt Susan

AuntSuess
12-27-2009

Happy holidays and Continued prayers
Happy holidays to you all! I am glad you had a nice Christmas Daisy; until you got sicker. I am sorry to hear you are back at CHOP, but happy to know that you are in good hands! You are always in my heart and on my mind. I love all of you very much xoxo Aunt Susan

linde246
12-09-2009

Blessings
So sorry that Daisy is struggling so much. Hope the signs of Christmas will bring her a little cheer. We pray without ceasing for Daisy and the family and hope that you will all be blessed this holiday season.

GrandCs
12-03-2009

God bless!
We are so very sorry to hear that Daisy is still at CHOP and still having difficulty! It does sound like it could be a reaction to the medicine. Hopefully, they will resolve the issue soon and Daisy will get better! As always, our prayers and thoughts are with the entire Sherman family - those at CHOP - those with friends and neighbors and we thank God every day for all the support that people so generously give of themselves to help. We are praying and sending positive thoughts and God's healing energy to Daisy. We love you! Grandma and Grandpa

Nurse Becky
11-30-2009

Hey Daisy!
Hi Everyone. Glad you got to spend at least part of Thanksgiving home. Hope the antibiotics kick in you feel better soon. The balloons are on their way, so hopefully that will bring you a smile. God bless, we luv you all. --Becky

AuntSuess
11-10-2009

Family time
Hi Daisy and all, I was very happy to hear you got to spend time with the family, having fun and enjoying the outdoors, nothing could be better! I was also happy to hear you went to see your favorite--MICKEY!!! YEA!!! I am still very saddened about your leg, and it weighs heavy on my heart, as it always has. As ALWAYS you and the family are in my thoughts and prayers. the surprise box I have been working on for you, is almost ready to mail. I am sorry it didn't go out sooner, as I have had some obstacles of my own to deal with on and off. You have 2 new cousins on their way also, Happy news! One is due to arrive around the same time as your new brother or sister, and I am not sure about the other one. I love you all-- tremendously! Aunt Susan